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Article Dans Une Revue Journal of Parkinson's disease Année : 2024

Delivering Multidisciplinary Rehabilitation Care in Parkinson’s Disease: An International Consensus Statement

Jennifer Goldman
  • Fonction : Auteur
Daniele Volpe
  • Fonction : Auteur
Terry Ellis
  • Fonction : Auteur
Mark Hirsch
  • Fonction : Auteur
Julia Johnson
  • Fonction : Auteur
Julia Wood
  • Fonction : Auteur
Ana Aragon
  • Fonction : Auteur
Roberta Biundo
  • Fonction : Auteur
Alessandro Di Rocco
  • Fonction : Auteur
Glenn Kasman
  • Fonction : Auteur
Robert Iansek
  • Fonction : Auteur
Janis Miyasaki
  • Fonction : Auteur
Victor Mcconvey
  • Fonction : Auteur
Marten Munneke
  • Fonction : Auteur
Karen St. Clair
  • Fonction : Auteur
Santiago Toledo
  • Fonction : Auteur
Michele York
  • Fonction : Auteur
Ronnie Todaro
  • Fonction : Auteur
Nicole Yarab
  • Fonction : Auteur
Kristin Wallock
  • Fonction : Auteur

Résumé

Background: Parkinson’s disease (PD) is a complex neurodegenerative disorder impacting everyday function and quality of life. Rehabilitation plays a crucial role in improving symptoms, function, and quality of life and reducing disability, particularly given the lack of disease-modifying agents and limitations of medications and surgical therapies. However, rehabilitative care is under-recognized and under-utilized in PD and often only utilized in later disease stages, despite research and guidelines demonstrating its positive effects. Currently, there is a lack of consensus regarding fundamental topics related to rehabilitative services in PD. Objective: The goal of the international Parkinson’s Foundation Rehabilitation Medicine Task Force was to develop a consensus statement regarding the incorporation of rehabilitation in PD care. Methods: The Task Force, comprised of international multidisciplinary experts in PD and rehabilitation and people directly affected by PD, met virtually to discuss topics such as rehabilitative services, existing therapy guidelines and rehabilitation literature in PD, and gaps and needs. A systematic, interactive, and iterative process was used to develop consensus-based statements on core components of PD rehabilitation and discipline-specific interventions. Results: The expert-based consensus statement outlines key tenets of rehabilitative care including its multidisciplinary approach and discipline-specific guidance for occupational therapy, physical therapy, speech language pathology/therapy, and psychology/neuropsychology across all PD stages. Conclusions: Rehabilitative interventions should be an essential component in the comprehensive treatment of PD, from diagnosis to advanced disease. Greater education and awareness of the benefits of rehabilitative services for people with PD and their care partners, and further evidence-based and scientific study are encouraged.

Dates et versions

hal-04416118 , version 1 (25-01-2024)

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Citer

Jennifer Goldman, Daniele Volpe, Terry Ellis, Mark Hirsch, Julia Johnson, et al.. Delivering Multidisciplinary Rehabilitation Care in Parkinson’s Disease: An International Consensus Statement. Journal of Parkinson's disease, 2024, 14 (1), pp.135-166. ⟨10.3233/JPD-230117⟩. ⟨hal-04416118⟩
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